2 days before our world came crashing down

FB_IMG_1497279954848.jpgWe came home today. Payton’s oxygen levels have dropped so we are keeping him on oxygen for the time being. He is sleeping sound snuggled with his pup who missed him so much. We would like to welcome any and all family members to come over anytime, for any amount of time you’d like, same goes for close friends (you know who you are) no phone call or text necessary,  just come on over. While some may want lots of privacy/not a lot of visitors in a time like this, we are feeling a lot more comfort with the support of our family and friends being with us. Payton says “anyone can come over and they can stay forever”❤. Tonight his Grandma, aunts(10 year old twins),  and cousin (8 years old, 6 months older than Payton) stayed the night and he requested they all sleep in our room with him, so the floor is full of kiddos who love him and he has mom, grandma, and Paisley in bed with him. For those coming to “say good bye”, we’d like everyone to know that 1. Although it may seem like he’s “out of it” or sleeping, his thinking/knowledge is 100% still intact  (for example,  I said to someone yesterday, thinking he was asleep, “He was so tired” and he perked up and said in an angry tone “I’M NOT TIRED”) Please keep in mind he hears all. And 2. Be prepared to not take some things he may say personally,  as he is in the most horrible position a child could ever be in, and he says things he does not mean 😔

I may not update again for awhile but we want to thank the thousands of people who have been praying for our sweet boy. May God bless each and every single one of you💛🎗💛


Author: PaytonPiesMommy

I am a mother to 4 beautiful and amazing children. My youngest son was called to Heaven on March 26th, 2017 after a 6 month battle with a brain cancer called DIPG (Diffuse Intrinsic Pontine Glioma). He was only 7 years old. My life has been forever changed and my heart longs to be with him. I must complete my mission on earth, until we meet again. Writing is my outlet.

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