Update 3/13/17

Our little guy is not feeling so good. He is experiencing a lot of pain while eating and has been aspirating some of his food/drinks. His oncologist said the loss of the ability to swallow is often one of the most troublesome side effects from brainstem tumors and we spoke about placing an NG tube so he can still get his meds and some nutrition. I talked to Payton about this in a kid-friendly language and he talked about a little girl from his school who has one and he is not showing any fear of getting one. Myself, as well as Jason, are not wanting to do this…I guess it makes it feel more real that our son is nearing the end of his life and we are, and never will be ready for that. Payton’s pain is very real and he has practically begged us to “just take me to get the tube so it won’t hurt”. We see his oncologist Thursday for a second round of Avastin and to see about the NG tube. I just want my baby to be pain free.

Author: PaytonPiesMommy

I am a mother to 4 beautiful and amazing children. My youngest son was called to Heaven on March 26th, 2017 after a 6 month battle with a brain cancer called DIPG (Diffuse Intrinsic Pontine Glioma). He was only 7 years old. My life has been forever changed and my heart longs to be with him. I must complete my mission on earth, until we meet again. Writing is my outlet.

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